For those like me who think the glass is half empty, people like Ivan have much to teach us. He faces daily challenges with his ‘Parkinson’s Plus’ (as I call it) Parkinson’s disease as well as other health problems which have limited his lifestyle as he gets older. He has enjoyed recent visits from family who live […]
When someone gets to Ivan’s stage of Parkinson’s disease (PD), that person will almost certainly need nursing home care. As we discovered when Ivan was still at home with me, it is not possible to build in care for every eventuality. There were days when his mobility was so poor that he needed a wheelchair; other times […]
Here’s the problem: Ivan has Parkinson’s disease (PD) and he is 93 years old, so his risk of falling is great. We have already been warned by the Parkinson’s nurse that any fall would likely compromise his long term health. Of course, this is true for all elderly people, but most of them seem to understand this […]
Although Ivan has memory problems occasionally, due to his Parkinson’s disease (PD), he also has clever ways of remembering things. We have a friend called Des who had a toe amputated. I was telling Ivan some anecdote about Des, and wanted to be sure Ivan knew who I was talking about. “Yes”, he said “Des No-Toe”. I […]
When someone with Parkinson’s disease (PD) gets older, that person is likely to be coping with other health problems too. Ivan is approaching his 93rd birthday, and I always say he has “Parkinson’s Plus”; in his case, Parkinson’s plus heart disease, Parkinson’s plus Diabetes Type II, Parkinson’s plus arthritis, and so on. There are other age-related problems […]
It seems my role as a carer is yet to come to an end. As I have accompanied Ivan through all his experiences with Parkinson’s disease (PD), I do have some insights to offer to those who are now responsible for his welfare. I serve as a human “memory stick”. While Ivan happily chooses to let go of the […]
Three months have passed since Ivan moved into the local nursing home. He has been exceptionally well, once he got over the initial infection which necessitated his admission. In fact, we have even considered whether he should return home to live, so quickly do the memories fade of sleepless nights and troubled days! A recent […]
Ivan’s reprieve lasted just three weeks. Then he had to be re-admitted into a nursing home. When he returned home in early April, he was very fit. His Parkinson’s disease (PD) symptoms were well under control. We took things easy at first; during the second week, we resumed the care plan, with Ivan going to his […]
Ivan’s joy at coming home after 5 weeks respite was marred when he discovered his bed had been brought downstairs to the living room. “I feel as if I have been written off!” I explained that, on the contrary, every effort had been made to enable him to continue living independently. Fortunately, he realises that […]
People say that a week is a long time in politics. It seems it can also be a long time in Parkinson’s disease (PD). So much can change in just a few days. Ivan never seemed to get better from his bout of gastroenteritis, so the community matron came to review him. She came on a […]
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